Delayed or absent puberty.

Kallmann syndrome and the related condition, congenital hypogonadotropic hypogonadism (CHH), are rare causes of delayed or absent puberty in both males and females. 

Kallmann syndrome is the name given to the form of CHH that occurs with an absent or highly reduced sense of smell (anosmia or hyposmia).

 For more information click the menu button in the top right hand corner of the screen.

Kallmann. Hypogonadotropic. Hypogonadism. Puberty.

A new not for profit 501(c)(3) approved patient group called I am HH has been created.

It will have a new website and social media feeds which are currently under construction.

The group will help provide support and information to patients and health care professionals.

Please help to support the foundation and running of this group by using the Go Fund Me page. All donations are gratefully accepted and all funds will be used in the running of the website, patient meetings and educational materials for the patients.

Details on how funds have been spent in the current financial year and previous year’s expenditure can be provided on request as can details of board members.