This is a patient made website about a rare hormonal condition called Kallmann syndrome.

I was misdiagnosed as a “late bloomer” until I was correctly diagnosed with Kallmann syndrome (KS) at the age of 23.

The full name of the condition is hypogonadotropic hypogonadism (HH).

When the condition occurs with a lack of sense of smell, it is known as Kallmann syndrome.

The condition affects both males and females, but is more often diagnosed in males.

The condition is normally present from birth (congenital) but rarer forms of HH can occur later in life after a normal puberty.

The primary symptom is a failure to start or fully complete puberty.