rare disease

University College Cork. School of Applied Psychology. Research Seminar. The psychological and lived experience of Kallmann syndrome.

In March 2023 I took part in a talk given at the University College Cork Applied Psychology Department.

Dr Samantha Dockray is running a research project looking at the psychological and social aspects of living with Kallmann syndrome / CHH. The first part of the project involved interviews with 14 patients (7 male and 7 female).

This video is a presentation given by a patient (me) and then Dr Dockray presents some preliminary findings of the review of the patient interviews so far.

It is hoped this will lead to future projects to help in the understanding of the psychological issues patients with Kallmann syndrome / CHH face living with their condition.