Basic introduction to Kallmann syndrome & Hypogonadotropic Hypogonadism
Research study at Imperial College Hospitals,, London. UK.
Imperial NHS Trust, London is running a research project that includes examining the testicular function of men with Kallmann syndrome / CHH.
The initial stage of the project will involve two clinic visits at Charing Cross hospital in London & a £100 participation payment is available.
It will involve a screening visit for blood tests & semen analysis and possibly an ultrasound examination of the testicles.
If you are interested, please email for more information on:
man.scan@imperial.ac.uk
Dr Nikoleta Papanikolaou
Patient made video on Kallmann syndrome
Patient made video. Diagnosis of Kallmann syndrome / CHH.
What is Hypogonadotropic Hypogonadism ?
The puberty protein - Kisspeptin
Kisspeptin is the hormone that controls puberty and the reproductive function.
Among many other functions Kisspeptin acts on the hypothalamus to allow it to release GnRH. It is this GnRH that controls puberty and reproduction.
In people with Kallmann syndrome / CHH they are unable to release GnRH at all or in the correct manner in order to function correctly.
If injected with Kisspeptin people with Kallmann syndrome / CHH will not respond in the same way other people would. This makes Kisspeptin as useful diagnostic tool for Kallmann syndrome / CHH to distinguish it from delayed puberty.
Talk given by a KS patient to a group of paediatric doctors about his experiences with the diagnosis and treatment of Kallmann syndrome.
This talk was given by a KS patient from the UK who is now married with two children. Here he gives a talk to a group of doctors about his experiences with the condition.
KS Patient Meeting. Sat 17th August 2019. Royal Free Hospital, London.
Kallmann Syndrome / Hypogonadotropic Hypogonadism Patient Meeting.
Sat 17thAugust 2019. 11am – 4:30pm.
Medical School Library, Ground Floor.
Royal Free Hospital, Pond Street, Hampstead, London. NW3 2QG.
Speakers:
Prof. Nelly Pitteloud. CHUV, Lausanne, Switzerland
Prof. Pierre Bouloux, Royal Free Hospital, London.
For more information contact:
Chance to hear from experienced medical experts and to ask questions about diagnosis and treatment options and a good opportunity to meet and talk to fellow patients in a relaxed and friendly environment.
Patients, parents and family members all welcome.
Nearest tube: Belsize Park (Northern Line) or Hampstead Heath Station (Overground).
The Medical School Library is on the ground floor of the hospital, which is the floor you enter the hospital using either the Pond Street or Rowland Hill entrances.
There is M&S coffee shop and WH Smith shop located very near the library with an additional coffee shop outside the Pond Street entrance. There is a larger M&S food shop and other shops on Pond Street, down the steps from the hospital’s main entrance.
