The meeting is to be held at the Royal Free Hospital in London on 6th August 2016.
It will be a chance for patients to meet and talk with medical experts on KS as well as an opportunity to meet and talk with fellow patients in a relaxed atmosphere.
Speakers will be Prof. Nelly Pitteloud and Dr Andrew Dwyer, who are internationally recognised clinical and research experts on KS, based at CHUV, Switzerland.