Videos on frequently asked questions on Kallmann syndrome and CHH.
Dr Andrew Dwyer is a nurse practitioner and clinical researcher with over 15 years experience both in the US and Europe in treating patients with Kallmann syndrome and CHH.
These three videos are from an interview I had with him at Boston College in the US where I asked him some of the most frequently asked questions.
Video 1:
https://bc.hosted.panopto.com/Panopto/Pages/Viewer.aspx?id=44a82ce3-babc-46fd-a1b2-063c886febed
Video 2:
https://bc.hosted.panopto.com/Panopto/Pages/Viewer.aspx?id=3424a74d-2f0d-48f8-aa73-3aed7854a693
Video 3:
https://bc.hosted.panopto.com/Panopto/Pages/Viewer.aspx?id=1f1539af-4f4b-46c6-b1b4-a64ffae95cce
Mark's Kallmann syndrome story
Patient video on Kallmann syndrome.
US Kallmann syndrome patient meeting 2017.
We are planning to hold a patient meeting for Kallmann syndrome / Congential Hypogonadotropic Hypogonadism patients in Boston, USA on Sat 21st October 2017.
The meeting will be held at the Reproductive Endocrine Unit at Massachusetts General Hospital in Boston.
It will be a good chance to meet fellow patients and to talk to experienced medical experts.
The meeting will be hosted by Dr Andrew Dwyer and clinicians from the Reproductive Endocrine Unit.
More details to follow later.
Patient video on Kallmann syndrome.
Rare Disease Europe (Eurodis) webinar on Kallmann syndrome.
You tube video - What is Kallmann syndrome ?
Author Aaron Davies talks about his experience with Kallmann syndrome in his book "Baggage Claim".
You Tube video - new diagnosis.
Mindcast Podcast on Kallmann syndrome.
Jason Grant Russell is a young Kallmann syndrome patient from Australia.
He recently had an interview recorded for a podcast where he talked about his early struggles with the condition and how those experiences have motivated him in his professional work.
Jason is open about his Kallmann syndrome and enjoys the chance to talk to fellow patients. His work not just as a physical trainer but as a motivational and development coach can help fellow patients in their own development.
