Research study in Belgium.
There is a proposed study looking into brain development or changes (plasticity) in patients with KS / CHH and to see if there are any changes related to hormone therapy when compared to a control group.
It is a 2 hour test which would involve a MRI, smell test and a interview. They are looking for both male and female patients.
Apparently they will pay expenses and accommodation to visit the treatment centre in Belgium.
I think they are after European patients mainly but there is no harm in contacting them for more information if you are interested.
Dr Andrew Dwyer is a nurse practitioner and clinical researcher with over 15 years experience both in the US and Europe in treating patients with Kallmann syndrome and CHH.
These three videos are from an interview I had with him at Boston College in the US where I asked him some of the most frequently asked questions.
We are planning to hold a patient meeting for Kallmann syndrome / Congential Hypogonadotropic Hypogonadism patients in Boston, USA on Sat 21st October 2017.
The meeting will be held at the Reproductive Endocrine Unit at Massachusetts General Hospital in Boston.
It will be a good chance to meet fellow patients and to talk to experienced medical experts.
The meeting will be hosted by Dr Andrew Dwyer and clinicians from the Reproductive Endocrine Unit.
More details to follow later.